Dermatomyositis

Dermatomyositis is a rare autoimmune disease.

Its characterised by a rash, which has a number of appearances, including something called gottron’s papules and associated muscle weakness and pain.

Doesn’t sound too bad when you write it down like that does it…truth is, it can be debilitating and cause disability and even death.

There is a form of the disease which doesn’t have the muscle involvement and thats called Amyopathic Dermatomyositis

Some further information can be found here:

Support Groups and Clinics, etc.

UK Dermatomyositis Support group

Pub Med information page

Mayo Clinic on dermatomyositis

USA Myositis Support

Australia Myositis support

Papers, Articles and Sites

Useful paper on dermatomyositis and polymyositis

Paper on Novel Approaches to Treatment of Myositis and Myopathies

Myomusings a great website from a sufferer of Inclusion Body Myositis

If you know of any good information sites or support groups, please let me know so I can add to the list

Advertisements

§ 7 Responses to Dermatomyositis

We love comments, go on, leave one, you won't regret it (well you might)

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Peter Turchin

Peter Turchin

The Debunked Diets Diet

A difficult year of month-long pseudo-scientific diets.

myitchybubble

my strange world : )

I Love Green Inspiration

fashion blog with an eye on everything inspired by nature

Rescue Rover

Homeless Dogs (and Cats) Looking for Forever Homes.

bipolarblogging

Bipolar life and times

Godhood of the Infinitely Small

FORTUNE | GLORY | EVIL RABBITS

The Better Man Project ™

a journey into the depths

Don't Be Sick, Be Strong

My Story About Living With Dermatomyositis and Staying Strong

I Am Rising

A Raw Vegan Voluntaryist in Tennessee

AddGrainOnEarth

A great WordPress.com site

The Brand Sherpa's Blog

navigating the contextual landscape of brand strategy

Information Warfare

Mobilisation, Action, Solutions and Peaceful Resistance.

THROUGH THE HEALING LENS

Hope & Healing Through Photography and Poetic Expression

Superhero Underpants

containing chaos in a single blog

Diary of a Gimpy Kid

ADVENTURES OF A FOUR WHEELED WONDER

%d bloggers like this: