Will I ever get my old leg back?

January 19, 2013 § 10 Comments


susincarIf you have been reading this blog, you’ll know I’ve got a bit of a gammy leg.

My neurologist said he didn’t know about legs so I needed to see  a rheumatologist – so my GP had to set up an appointment and it took a few weeks (the wonders of the NHS). Yesterday I saw a rhuematologist at the ‘Freemans hospital’ in Newcasle upon Tyne.

In case you don’t know, my gammy leg swells up both in the front and the back of the knee and into the thigh. The back is most likely a Bakers Cyst. But the front, the doctor isn’t sure if it’s an independent problem, or connected to the cyst. The Bakers cyst isn’t that big a deal, to be honest, it’s stiff more than sore, but the front swelling, well that’s another thing altogether and affects my muscle above the knee right up the length of the thigh and that really hurts! All I’ll say is that analgesics don’t even touch it, but heat packs are great, they sooth it, thank god for heat packs.

The rheumatologist did an examination of my legs and came to the conclusion that something wasn’t right with my knee, but that she had never seen this in dermatomyositis before – she’s one of the north of England specialists in the disease, so I take her word for it. So, she offered me an MRI, or treatment and then an MRI if treatment didn’t work. I took the latter as I really wanted/hoped for relief. The ‘treatment’ involved inserting a rather large needle into my knee and injecting steroids in. It wasn’t too bad because my knee was anaesthetised (bit like getting a filing at the dentist).

I came home and within hours my knee had swollen up and the bakers cyst appeared (it sort of ‘pops’ out) and my leg was extremely painful. I had to resort to the heat packs again. I called the doctor and she said it was most likely a reaction to the steroids and it would settle down, which Im pleased to say, it has.

SO, the point of his post is really just to give you an update on the whole gammy leg episode and where I am at with it. To tell the truth, the whole thing depresses me, it stops me from building up my strength – if I do anything much, I end up with a very painful leg that I have to keep off for days. Dermatomyositis is an insidious disease that relentlessly attacks not just your muscles but your very being. I’ve not given up though, Im still fighting it and I’m determined to win. Fingers crossed this treatment works, then its onwards and upwards, no more gammy leg tales…

Oh and before I go, for your delight, here’s another ‘leg’ I found in the field next to our house (not sure who had been chomping on it):


Tagged: , , , , , , , , , , ,

§ 10 Responses to Will I ever get my old leg back?

  • Nichole Smith says:

    That’s terrible! You traded one problem for another! When does it stop?? UGH!! I am glad the heat packs offer you some relief though….

    Is that a deer leg??

    Thinking of you always! xoxoxo

    • susiemorrow says:

      I know when does it stop Nichole, I get really down about it sometimes, Im so fed up with waiting to be myself again.

      Yes its a deer leg, gruesome or what! I once found one in the branch of a tree once too – apparently there’s talk of a mythical ‘Panther’ in these parts! Probably my brother, hungry after a night out…

      Much love Nichole, fellow DM sufferer!


  • Nichole Smith says:

    In a tree???? Wow! That is a little scary! I really do love the bond between you and your brother, I can tell it’s a strong one with the way you tease, lol!

  • JillinoisRN says:

    I’d get the MRI. With the muscles involved in a way that isn’t consistent with the dermatomyocytis (hey, I didn’t have to cheat for spelling !!), I’d get it checked…. OK. Enough of the unsolicited advice 🙂

    We have issues with the time it takes to get seen by docs here, too. If I don’t take my assigned appointment with a couple of my docs, it can be a couple of months to find an open slot. My regular doc isn’t a problem, though.

    • susiemorrow says:

      Well it actually got better and for the first time in a long time Ive had no pain in my leg, it’s a miracle! I will have to have an MRI though if it starts up again, but fingers crossed, maybe its fixed (is that speaking too soon) xx

  • JillinoisRN says:

    I’ve missed your posts- are you doing OK? 🙂

    • susiemorrow says:

      Ive been wanting to post but somehow been unable to and then I realised that its because im starting to feel a bit better (I daren’t even say that in case it jinxes things). Suz feels the same too. Were going to each write a sort of goodbye post to leave the blog for a while and to let life take over again. Its been a rough year (It’s my birthday today and i sort of feels a little teary about it all) but it feels like it may be moving into anew era. Certainly neither myself or Suz are back to normal, not sure I ever will be to tell the truth, it is an incurable disease after all, but it feels more like me at the minute. Ill stilll be reading your posts though Jill xxxx

We love comments, go on, leave one, you won't regret it (well you might)

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

What’s this?

You are currently reading Will I ever get my old leg back? at stonesintheroadblog.


%d bloggers like this: