What I Wish . . . following on from Sus’ Theme

October 31, 2012 § 4 Comments

I wish my mouth didn’t hurt and I could eat a meal and enjoy it !!!! 

Only earlier today I was telling someone that I was feeling good and that my mouth had cleared up – certainly compared to a couple of weeks ago.  Well once again I spoke too soon.  After dinner tonight my teeth were aching, my gums literally throbbing and by tongue burning.  I immediately did the mouth wash routine I have to do but even now – over 3 hours later, it is still hurting and feeling raw.  I have to say that of all the chemo side effects this is the one that I hate the most – that, and the metallic taste.  It really puts you off your food and even when you think you are having something nice to eat, it still tastes like metal !!!!!!!

On a happier note I saw my haematologist today.  She is such a great lady – both a great clinician as well as caring.  I feel very privileged to have struck the jackpot in having her on my side.  Anyway, she says I am going really well – although she did say I  have the look of someone battered about by five doses of heavy duty chemo treatment (seems make up can hide only so much !!).   We are now getting to the point where we are starting to arrange the post chemo PET scan to see how the treatment has worked. There is every reason to believe all is on track – but I guess we will only know for sure once the tests are done. She was showing me all the results from my bloods  – and the cumulative affect of the chemo.  It really brought home to me just how much it knocks the system around and how dramatic the changes are over the life of the chemotherapy.  Little wonder it takes a good six months or so to get your body back into decent condition after the therapy finishes.  I just feel very lucky that my body has held up pretty well.  So I guess at the end of the day – I shouldn’t be wishing for too much.  After all I have been pretty lucky.

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§ 4 Responses to What I Wish . . . following on from Sus’ Theme

  • jillinois says:

    Do you have Kanka Beads available there? They’re usually in the toothpaste aisle near the mouth sore gels. They’re little 3-4mm balls filled with numbing stuff…helps with mouth sores a lot, and they’re very portable. :/ My nose and taste buds are still weird (and I’ve been off of chemo for over a year). It does get better, though ❤

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