Myositis Awareness Day: 21 September

September 14, 2012 § Leave a comment

21st September is Myositis Awareness day, trying to make the world more aware that the disease under this banner, of which I’m one of the unfortunates to have experience of (dermatomyositis) needs more funding and attention.

Myostis is a disease affecting the muscles:

myo  =muscle

sitis  =inflammation

there are four main categories:

  1. Dermatomysotis – my particular favourite as I’ve got it (I’d like it renamed to dermatomyo-shite-is)
  2. Inclusion Body Myositis
  3. Polymyositis
  4. Juvenile myositis

They are all rotten diseases. They are rare autoimmune diseases and as such often misdiagnosed, it took me 6 months to get diagnosed, so it can take a long time to get treatment and these diseases are most effectively treated when caught early. Each seems to have slightly different effects on the sufferer (and sufferer is what it feels like, trust me on this).

More information can be found here:

USA Myositis Awareness day

And an Australian Myositis Awareness Week starts on the 17th:

There doesn’t seem to be an event in the UK and I’m not sure about other parts of the world – maybe you know?

Lets kick the butt of this muscle wasting banshee!!


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