Superman, Oh Superman, I know How You feel, Oh Darling Man
August 27, 2012 § 8 Comments
It’s often difficult to get across to you healthy folks (I’m so jealous of you all) about what it feels like to have this disease. Just to give you a feel for what it’s like to have extreme exhaustion and weakness and pain, that means that even the most simplest of little outings can leave you drained and in pain for days.
And then it hit me, of course! It’s what Superman must feel like when he is presented with kryptonite – not that I was ever exactly super woman, of course, but you get the idea.
I feel like I’m dragging a lump of kryptonite around with me.
Superman, oh Superman, I know how you feel, oh darling man
I’m so sorry you feel like that. I know a little of what it’s like. I have multiple sclerosis and am wheelchair for the most part, bound. Weakness sucks, but it’s good that you are writing about it. Writing has saved me.
Thanks for your comment Hobbler (appropriate name). Well thankfully im not in a wheelchair and I’m hoping it’ll never get that bad. Writing this all down definitely helps, makes you feel less alone and less of a freak.Your blog is brill BTW
Thanks! Yours too. It takes a lot of guts to write about real life. Especially when it is hard.
It is hard, its hard mostly to be revealing about things that normally would be highly personal and normally I’m an extremely private person. This is different though, its a need to be cathartic and to find others who feel the same xx
At least Superman could get shielded from kryptonite and gain some respite!
Ah yes, but then he had to go save the planet and stuff, poor sod. He did get to kiss Lois though.
I explained the sun the other day as my kryptonite! It was a great way to explain it. But you are right, sometimes it feels like I’m carrying it in my pocket. Thanks for sharing! It really makes a difference.
I wonder if the person who originally thought up the idea of ‘kryptonite’ had a similar problem to us Nichole? Because it is so fitting xx